My niece, Hannah, is in the hospital this morning, having suffered several seizures last night. Hannah is a beautiful girl who lives with Rett Syndrome. For those of you who have never heard of Rett Syndrome, here is a description that I found on the International Rett Syndrome Website:The child with Retts is usually born healthy and shows an early period of apparently normal or near normal development until 6-18 months of life, when there is a slowing down or stagnation of skills. A period of regression then follows when she loses communication skills and purposeful use of her hands and slowing of the normal rate of head growth become apparent. Soon, stereotyped hand movements and gait disturbances are noted. Other problems may include disorganized breathing patterns which occur when she is awake and seizures.
Hannah is an only child, the of treasure of parents' hearts. She is a very brave little four-year old who inspires joy in just about anyone she meets. I don't understand much of the suffering that God allows in this world, but I pray that He is holding Hannah and her parents tightly in the palm of His hands today.
Hannah has been in our prayers...is she still at the hospital? How is she?
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ReplyDeleteHannah went home from the hospital yesterday. The doctors believe that the seizures were the result of a high fever and not because of the Retts Syndrome--this is a good thing. It means that Hannah did not have to go on to anti-seizure drugs. Please pray for no more seizures.
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